The use of proportional palliative sedation for the relief of refractory symptoms: an international multi-centre study

An EU Horizon2020 Research Project

About the project

A €4 million project to investigate how best to help patients with distressing symptoms near the end of life will focus on the clinical, ethical, legal and moral aspects of providing sedation to dying patients across Europe.

“This research will focus on improved ways of assessing and managing refractory symptoms and the adequate use of palliative sedation, taking into account differences across Europe in both clinical and ethical aspects.”

Dr. Jeroen Hasselaar

Associate Professor Jeroen Hasselaar
Project Co-ordinator

#EUHPP WEBINAR
Palliative sedation policy and practice across Europe: learning from the H2020 project

Palliative sedation policy and practice across Europe: learning from the H2020 project. The Palliative Sedation project aimed to investigate the best way to help patients with distressing symptoms near the end of life, focusing on clinical, ethical, legal and moral aspects. This webinar recording presents the main results of this 5-year study into palliative sedation, highlighting good practice in this area in different European countries. 

An introduction to the project

Associate Professor Jeroen Hasselaar, the project co-ordinator, introduces the project and its aims.

Palliative Sedation eBook cover

The role of Palliative Sedation in palliative care

Released in September 2023, this free eBook covers the topic of palliative sedation and related subjects like definitions, ethics and practice in palliative sedation as well as the recently published EAPC framework on palliative sedation.

 View our dedicated page to read the eBook online

Our Goals:

Evidence

To evidence and investigate the practice of proportional palliative sedation

Investigate

To investigate the use of moral case deliberation for palliative sedation

Update

To revise the 2009 EAPC recommended framework for palliative sedation

Understand

To increase public and professional understanding of palliative sedation

Palliative sedation at the end of life

An infographic created by the ATLANTES research team, University of Navarra, graphically demonstrating the terminologies and potential pathways incorporated into the current delivery of palliative sedation.

 

Behind the Scenes

An introduction to some of the research work being conducted within our Work Packages.

More details about the research being undertaken by each of the work packages can be found under the menu ‘Work Packages’.

Recent Activity

 

Palliative Sedation Project represented in Barcelona
(15-18 May 2024)

The Palliative Sedation Project was represented in May this year in Barcelona at the World Research Congress organised by the European Association for Palliative Care (EAPC). More than a thousand people from around the world took part in this congress.

There was a session dedicated exclusively to publicising the twenty research projects co-funded by the European Commission in which the EAPC is involved, and Jeroen Hasselaar, principal investigator and coordinator of the Palliative Sedation project, had the opportunity to present to the audience the objectives of the palliative sedation project and the products that have been achieved over the last five years.

The project ends in June 2024 and includes eight scientific publications, an infographic in ten different languages, a digital e-book on palliative sedation and a free online course entitled ‘Dying Well: The Role of Palliative Care and Sedation in End of Life Care’.

montage of the EAPC Congress centre with large digital welcome board with inset of Jeroen Hasselaar delivering a talk about the project

Jeroen Hasselaar talks about the project at the EAPC Congress 2024

Abstract submission for #EAPC2025 is NOW OPEN!
All the information you need is here: https://eapccongress.eu/2025
You have 40 days to get your abstracts in before the deadline of midnight CET on 31 October 2024.
It's a strict deadline this year, there won't be any extensions allowed!

Call for papers on #PalliativeSedation launched by BMC Palliative Care - https://www.biomedcentral.com/collections/pas

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Resources

Publications and other documents relating to the project can be found below.

Recent Publications

How to measure the effects and potential adverse events of palliative sedation? An integrative review
DOI: 10.1177/0269216320974264

Clinical Aspects of Palliative Sedation in Prospective Studies. A Systematic Review
DOI: https://doi.org/10.1016/j.jpainsymman.2020.09.022

Recent Presentations

The following presentations were given during a Palliative Sedation webinar, held on the 3rd June 2021.

Palliative sedation: Introduction

Clinical aspects of Palliative Sedation

Reflections on palliative sedation! Case presentations